April 27, 2012

CA-125 Stabilized ~ Then Chemo Again!

Posted in Health, History, Life, Personal tagged , , , , at 8:54 pm by pdxfirefly

It has been one month since I had chemo.  I had my CA-125 drawn yesterday and the result came back today before my doctor’s appointment.  Normal is 35 or below.  Last month my CA-125 was 422Today it was 430.  I have been on chemo for the last 4 months. In other words, my CA-125 (the Ovarian Cancer Tumor Indicator) has continued to rise while I have been on chemo;  it should go down while on chemo!

While I was slowly starting to mildly ‘freak out’ over the increase in the result my doctor quickly said that she considers my CA-125 to be “stabilized’.  This is a new word for me as far as my disease progression/experience goes.  My doctor explained that my CA-125 may drop next month, it may stay the same, or of course, there is always the possibility that it might go up.  In any event she is considering this latest result to indicate that my cancer has stabilized for now.    It sounds OK to me, but is just some sort of phrasing to make the patient (me in this case) feel better about the test result.  My latest mantra for now “The CA-125 is just a number.  It only indicates a trend.”

I had combination chemotherapy again today.  Doxil and Carboplatin are the main drugs that I received along with several supporting medications.  It took over 5 hours to administer them all.  Tonight I have a headache that just won’t seem to go away … so I am treating that.

I am feeling a bit ‘needy’ tonight and couldn’t even think straight enough to think what meds might help my headache.  I finally decided on a combination of Aleve and Tylenol after an afterhours call to my on-call Doctor.  I just couldn’t think straight enough to make a decision about the meds and I needed help with the decision.

Whoa! I almost forgot about the constipation that follows chemo –better be proactive about that!

So, I am back on the chemo merry-go-round.  I’ll have a difficult 2 weeks and then I’ll start feeling better and then try to get lots done in 8 days before my next chemo!

Sure hope this headache goes away soon!

April 6, 2012

Nausea Update

Posted in Health, History, Life, Personal tagged , at 11:54 pm by pdxfirefly

This has been the worst nausea that I have ever had from chemo.  It is now 11 days after chemo and I am still experiencing it constantly.  I take my anti-nausea drugs, but it is still there.

Today I felt well enough to get dressed and drive to the acupuncturist office.  It was my 3rd acupuncture treatment and I do get some good results from it.  It is really a cool therapy and so amazing how the body’s own energy works to heal it!

Gradually feeling better!

March 24, 2012

Three Year Cancerversary

Posted in Health, History, Life, Personal tagged , , , , at 9:17 pm by pdxfirefly

Well, March 19th, 2009 was the date that I received my Diagnosis of Ovarian Cancer.  At 7:30 am the next morning, we were in the Gynecological Oncologist office.  Within three hours, I was started on life-saving chemotherapy poison.  The average life expectancy is 25 months.  Three years ago, we didn’t think I would even make two years.  Now here I am three years from this devastating, aggressive cancer called primary peritoneal carcinoma.

Wow, I am still alive!

I am still in chemotherapy, but I am alive.  Even though I am unable to participate in life very much for two weeks out of every month, at least I am experiencing some longevity.  That longevity has given me time for three more birthdays of my own, three more Christmases, three more birthdays of my adorable Grandson, and the birth of my precious Granddaughter ~ her first birthday is coming up soon!  So I have seen some very special milestones that are important and memorable in anyone’s life.

Oh, I forgot, I wrote and published a book, have another on ‘on the burner’;  I am President of my P.E.O. Chapter (currently in my second year) and making a positive difference in the life of our chapter.  I also speak on a regular basis to 3rd year Medical students, Pharmacology students, and Physician Assistants as well as to women’s groups.  Oh, and I pass out my Ovarian Cancer Symptom Cards to complete strangers whenever I have the opportunity to do so.  So I have been doing some very positive projects that hopefully will have a lasting impact ~ even after I am gone.  Something that will help others remember me…. and even more importantly remember the symptoms of Ovarian Cancer and that TEAL is the color of our ribbon!

Wow!  I really never thought that I’d really see March 20, 2012!

Way to go Warrior Firefly!

March 7, 2012

How are you Doing, Firefly?

Posted in Health, History, Life, Personal tagged , at 12:45 am by pdxfirefly

I really didn’t get this question answered for you the last several days…. so here goes…..

I am doing fine.

I had my usual week of recliner time with frequent naps and forcible activity trying to manage the chemo side effects with appropriate medications and still trying to eat healthy (whatever that means!).

I have noticed that as the number of doses of chemo increases over the years, that I experience  more  nausea.  It is still easily controlled or rather should I say, easily lived with, but still there nonetheless.  However it does not negatively impact my life  too much yet.   The worst part is that the anti-nausea meds make me sleepy . .. so I take them at night!

March 6, 2012

Do I Apologize?

Posted in Health, History, Life, Personal tagged , , , , at 12:41 pm by pdxfirefly

I am just now coming out of the Netherland of last week’s chemo brain; and I just reread my previous post.   It does sound sort of depressing.  And I have to admit that I was feeling very depressed at the time it was written and all of my musings are those that I was feeling at the time and for days before and after.  The intent of that post was to express my true feelings… not to upset anyone and so I apologize for any upset caused by my words.  At the same time, the point of this blog is to keep you appraised honestly of what is going on in my life and so for the honesty, I will not apologize.  I do want to thank all of you for the prayers and notes and cards and good wishes.  They are a huge help in times of darkness.

And today I am somehow climbing out of the pit of darkness…..

February 26, 2012

A Setback

Posted in Health, History, Life, Personal tagged , , at 5:36 pm by pdxfirefly

As you know, my CA-125 blood test went up from 142 to 529 this month after I had chemo. This is the first time that my CA-125 increased while I was on chemo.

At first I wasn’t too concerned about it, but since I’ve had 4 days to think about it, I find that I am starting to get depressed and wonder if this could be the ‘beginning of the end’.  Oh, yes, I do try to put those thought out of my mind, but there they are… creeping right back in.  I’ll find out more tomorrow, but that doesn’t change the facts. And it’s the facts that present the clearest picture.

For the last two days, I’ve been referring to it as ‘just a little setback’.  Mostly to keep those that love me calm;   and I really do believe that is what it is.  But…. The grim reality of this horrible cancer is always there in the back of my mind.

Just to remind you of the statistics …

21,500 women are diagnosed with Ovarian Cancer annually .

15,000 women die of Ovarian Cancer annually.

Ovarian Cancer is the Fifth leading cause of cancer deaths in the nation.

67% of women are diagnosed with late stage Ovarian  Cancer.

The five-year survival rate is 30%. (Yes, that means that only 30% of women diagnosed with Ovarian Cancer live 5 years).

I am approaching my 3 year anniversary in March. I have been on chemo all but 9 months of that time (and not 9 consecutive months).

I actually have a very rare (and aggressive) type of Ovarian Cancer (Primary Peritoneal Carcinoma) which is present in only 1% of Ovarian Cancer patients.

The average life expectancy is 25 months –and I’m well past that mark.

February 25, 2012

CA-125 Goes Up

Posted in Health, History, Life, Personal tagged , , , , at 12:51 am by pdxfirefly

Well, it looks like my CA -12 went up.  This is the first time this has happened… no response to the chemo.

I did not have Chemo yesterday as scheduled… we are revisiting the drug cocktail that I’ll be receiving.

 11/28/11  663

12/29/11  263

1/26/12    142     I was on Carboplatin those 2 cycles.

 2/23/12  my CA-125 has jumped to 529.  After 50 cc of DOXIL one month ago.

I do know that sometimes the CA-125 doesn’t necessarily come down for a few months on Doxil, but that is a pretty big jump up as opposed to staying about the same.

Right now, I do not know how I am feeling… I need time to process and talk to the doctor.

February 24, 2012

Chemo Day

Posted in community, Health, History, Life, Personal tagged , , , at 12:09 am by pdxfirefly

Today I go and see my Doctor and get my Chemo. I was notified yesterday that my dose of DOXIL had indeed arrived and was waiting for me!  This is great news for me.  It is helpful for me to know ahead of time that it is there, because there are some preparations that I have to make before I receive the DOXIL infusion.

I cannot vacuum, cannot do laundry, cannot chop/prepare foods, cannot wash dishes, and I cannot wear any tight clothes. There are  also food restrictions:  no tomatoes, no citrus, no spicy foods.  So my days prior to the infusion are busy with house cleaning and shopping and meal prep.  I also cannot do any crocheting and so I have a supply of interesting travelogues to watch! And for two days after the infusion, I have to soak my hands and feet in ice water to prevent the blistering side-effects!  So no typing!

I had minimal side effects from the last dose, so prayers for the same again this time.

January 31, 2012

Chemo Again

Posted in Health, History, Life, Personal tagged , , at 3:27 pm by pdxfirefly

I had chemo last Friday.  One of these days I’ll have to total up the number of time that I have had chemo.  I think it is pushing 40.

This time I had part of the Doxil that was allotted to me.  Doxil is the main Ovarian Cancer drug that is experiencing a shortage.  I started on Doxil last May or June and had a very good response to this drug.  I also had level 4 side effects due to the toxicity of the drug.  Because of the toxicity I went off of the drug for a few months;  this was when the national Doxil shortage became apparent to the medical community.  My doctor immediately put me on the Doxil waiting list and that was the last we heard from Doxil.  When I had my 3rd recurrence this Fall, I went back on a drug that I have had in the past with success — not great success, but acceptable success in fighting my cancer.

When I went in for Chemo the end of December, there was a surprise for everyone at the clinic….. Doxil had sent  a dose of the life saving drug for me.  With my name on it.   No one else could have this dose of Doxil…. it literally had my name on it and no one elses!!!  This was the first Doxil that my cancer clinic had seen since the summer… and I was to be the lucky recipient!  The drug was shipped in two vials, one considerably larger than the other  with the total dose being what I received during the summer months with good results.  It is unknown when Doxil will be back in production in the United States.   So… in an effort to make it last and not knowing if I would receive another life-saving dose, and in an effort to reduce the side effects, my doctor and I decided to only give me the large vial of Doxil.  That way if no  more is received, then I can at least have a ‘smidgen’ of the drug next month if no more comes in for me.

I have heard reports that Doxil is available in Canada and also in Europe.  With my travel benefits, either one of those might be a definite possibility. I think I’ll do some advance research with my doctor and see just what the procedure would be if I do want to go to another country for this drug.

Meanwhile, you can pray that I have no ill side-effects and that I will also be ‘gifted’ another dose of Doxil right here at home.  Because to receive this lifesaving drug is truly a gift to me.

December 31, 2011

Happy New Years Eve!!!!

Posted in History, Life tagged at 12:34 am by pdxfirefly

As 2011 comes to a close, we reflect on the achievements and accomplishments of this past year as well as setting our sights  on the wonderful possibilities that life has in store for us in 2012!  I am so very happy.  I have had a great 2011 and I expect the same of 2012.  I wish Health, Wealth and Happiness for all of us in 2012!!

December 4, 2011

CT Scan Update

Posted in Health, History, Life, Personal tagged , , , at 10:33 pm by pdxfirefly

OK, I know, it’s more than one day later.  Give me a break!  I just had chemo… I’m doing very well to get out of bed and take little Mercedes outside several times a day.  The sun has been shinning here in Portland for the last few days and it is to continue for the next several days!  Yeah, sunshine !  A few hours ago, the ‘brain fog’ started to lift slightly.  I am still being very proactive against nausea, and I am eating little bits of food several times a day…  and I get up and walk around every now and then.  No nap today, but I bet that I climb into my nice warm bed pretty soon…. I think I hear my pillows calling to me……

My CT Scan was done last Monday.  It showed  two golf ball sized fluid filled cysts and several smaller ones.  It seems that my small intestine ( and something else — too lazy to look it up) is ‘glued’ to the back of my abdominal wall.. so it doesn’t  ‘move freely’ like it is supposed to.  No I didn’t even bother to ask what that meant.  I am just hoping that everything resolves itself with the chemo.

All in all I am feeling pretty good..  had some fatigue last week and a lot of weirdness – light-headedness some minor nausea contained with drugs.  So I need to finish getting things done!!!  Like that’s really going to happen!!!!

November 29, 2011

No Chemo Monday

Posted in History, Life, Personal tagged , , at 4:07 pm by pdxfirefly

I had my blood drawn and saw my doctor.  When she did the physical exam on me, she felt a golf- ball sized mass in my abdomen that wasn’t there two weeks ago.  She decided that I should have a CT scan and gave me the option of having the Scan on Monday with Chemo on Tuesday or visa versa.  I opted to have the CT Scan on Monday so I could get home sooner, because I still had lots of catching up to do from the holiday visiting.  That meant that I would have Chemo today!  so that is what I did.

November 3, 2011

NED

Posted in Health, History, Life, Personal tagged , at 12:00 pm by pdxfirefly

The letters NED have significance regarding Ovarian Cancer.

If a patient is not cured (which I was not) then there is no such thing as remission for OC.  The term that is used is NED ~ No Evidence of Disease.

I have never been NED since my diagnosis. But I did find a different definition of NED that does fit my situation.

NED ~ Not Eligible to Die!
So I will hold on to NED for as long as I can!

October 25, 2011

Ticket to the Ballet

Posted in Fun, History, Life, Personal, story tagged , , , at 5:46 pm by pdxfirefly

When young, I took ballet lessons in Whittier at the Mona Frances School of Cecchetti Ballet (for many years). Mona Frances was a Ballerina of the highest caliber. At our little Whittier ballet school, she brought in George Balanchine and his New York ballerinas to teach us his new ballet “Graduation Ball’. Mr. Balanchine returned for the opening performance and he ran into my girlfriend and I while we were waiting in the green room at Whittier High School Auditorium for our entrance on stage. He said that we “looked too beautiful to be little school girls”. I guess we were just natural beauties and had never really worn much make up so the stage makeup really made us look very pretty… which was NOT what he wanted. So, back to the make-up room we went and put freckles on our faces and that pleased him. I have never forgotten that vis-a-vis encounter with that great ballet choreographer.
At rehearsals at the ballet school, Mr. Balanchine’s new York Troup wore very revealing short cropped tops (quite risque for the early 1960′s) and he chastised them in front of the ballet school dancers. I think he wanted to impress Miss Frances (as we always called her). She had red hair and always insisted that we dance to live music and there was always a pianist present at each class.
My pink toe shoes are from that time and there is a very unflattering photo of me in costume for Graduation Ball. Oh, and I have performed in the Nutcracker as well, so I am very familiar with the choreography and beautiful music! Also somewhere in my important papers you will find my Cecchitti Examination certificates. I worked very hard to achieve the different grade levels and each one took several years of training to even be eligible to take the hours long dancing exam.

October 13, 2011

Traffic Jam Shortcut

Posted in History, Personal, Portland tagged , , , at 12:21 am by pdxfirefly

As I was trying to get home before the 3:00 pm school traffic, I was rejoicing because I was going to make it home before three-o-clock!  I was 2  miles from home and all looked great as I turned from the shopping  mall onto the main street that would lead me to my neighborhood a few minutes away.   Well, that was short-lived!  As I came down the hill I could see cars stopped for at least a half mile up ahead.  I groaned.  Then as I looked in my rear view mirror, I saw the car behind me pull out around me to my right and take a right on the next street.  The car behind him followed and the car behind her followed too!  Hummmm, I pondered.  I have never even noticed Cherry Street before, but those three cars didn’t hesitate to take the previously un-seen street.

It looked like a great option. If it was an alternate route, I’d be home in a few minutes and I will have learned a new way home.  If it turned out to be a fluke, then I would have learned something new about Portland!  I love adventure… so… I followed the other three cars.

And it came out at a very familiar street.  I was on  my way home!   This was one of those times that intuition was right! And I could get home in time to miss all of those school busses!

October 3, 2011

Heightened Terrorist Alert

Posted in History, Life, travel tagged , at 12:53 am by pdxfirefly

There is a HEIGHTENED TERRORIST ALERT  for all Americans abroad because of  the recent assassination.– and possible retaliation is feared by the State Department.  And….London has always been a hotbed of terrorist activities.
so…. The State Department  and Portland Firefly are recommending
1. Always be alert to your surroundings
2. Avoid large (mob) gatherings.
3. Always have an escape plan/ route  (‘The emergency exits are located…”).
4. Know where there is safe cover available when transiting public
transportation places  such as trains.
5. And airports can be very dangerous as well.
Most of all… TRUST YOUR INSTINCTS -  If a place doesn’t ‘feel right’ to
you …. then get out and explain later.

This instinctive feeling saved the lives of several Americans as they were entering a restaurant.  They didn’t stay and the restaurant was destroyed by a suicide bomber.

October 2, 2011

The Hungry Hawk

Posted in community, Fun, History, Life, Personal, Portland tagged , , at 12:17 am by pdxfirefly

As you know I love to go and watch the Swifts at Chapman School.  The nightly show is a Portland exclusive and a special tradition!  Every fall, I try to go at least once;  and it is usually only once a year.  But this year it is different.  My PEO Chapter attended earlier in September however my family couldn’t come that night.   So last night the family (and a few friends) went to see the spectacular air show by natures creatures.

There were a lot of birds early in September, but not as many as there were last night!  Also the first time we went this year, we never saw one raptor (hawk) getting his dinner.  But last night was a different story! It was more fun last night because there was more action.

The Vaux Swifts were just beginning to fly down the famous Chapman School chimney when the crowd saw the big black bird come swooping into the flock of Swifts.  The crowd ‘oohed’ in unison as the flock scattered in the air. Disoriented, the hawk kept flying then disappeared.  But only for a while.  Soon he was back for another try.  No luck this time either. And it actually looked as if the flock of tiny Swifts were chasing that big old black hawk away!  They circled and dodged each other for many enchanting seconds.  Then nothing and the crowd went back to watching the birds fly into the chimney.

And then I felt it…. at the same time I saw it … the Hawk was on a diving run and just a few feet right over my head!  Zoom!  I think  I heard the rush of wind on his wings he was so close to us on this dive bomb run!  Again it looked as if he missed.

Ah.  But Mr. Hawk was still hungry and was not about to give up.  The crowd was in for two or three more thrilling hunting passes.  The flock scattering each time.  Finally the hawk gave up (did he get his fill?) and the last of the little Swifts went into the chimney for their nightly rest.  The crowd applauded in joy and appreciation and collected their picnic baskets, blankets and trash and headed home with smiles on their faces.

September 11, 2011

September 11, 2011 ~ 10 Year Anniversary

Posted in History, Life, Personal, story, travel tagged , , , , , , , , , , , at 6:36 pm by pdxfirefly

Today is September 11th.   9 / 11

This is the 10 year anniversary of the terrorists attacks on our country.  This is a reprint of my annual September 11th post because I actually had 5 of the terrorists on board my flights the summer of 2001 during their reconnoissance flights.  My comment to Mohammed Atta caused them to modify their plans from using all American Airlines planes to using two from United Airlines.  After I recounted my story to a working American Airlines Flight Attendant, she looked at me, gave me a hug, and said “You are a hero. You saved some of our planes and crews and passengers.”  I told her that “ yes, there were two less American Airlines planes, but two more United ones.  So I don’t feel like a hero at all.”  Of course, I had no idea that I had been conversing with the ringleader until well after 9/11 and I saw the terrorists names and pictures.   Here is my true story.

At the time, I was an active Flight Attendant for a major United States carrier.   Yes, one of the ones that lost planes, crew members, and passengers.  And no, I did not know anyone on board any of those historic flights and even though I lived in NYC for a number of years, I did not know anyone who was murdered in the attack on our country that day.

I was at home between flights thinking about packing for my regularly scheduled flight the following morning when the phone rang before 9:00 am.  It was my Mother calling to the midwest from her California home.  She did not greet me with “Hello.” But her anxious voice said my name, and then,”Is that you?  Are you home?’  Then with audible relief in her voice “Oh, thank God! Are you alright?”   I was puzzled and probably replied something like “Yes, I’m alright. Why wouldn’t I be alright?”

She then said “Don’t you know what is going on?”  I said, “No. What is happening?”  My mother then asked if I had the TV on.  When I said, no, she told me to turn it on.  When I asked her, “what channel?”, she said, “Any channel.”  I watched the attacks in unbelief trying to wrap my mind around what my eyes were seeing…. trying to process the visual information that just didn’t want to process mentally.   To this day, when I watch the documentaries of the attacks, I still cannot totally comprehend the magnitude of the events of that day.

It reminds me of my reaction to the plane crash in Sioux City, Iowa years earlier.    Over and over I watched the news reports trying to imagine the horror inside that plane as the plane tore apart while on fire .  You will recall, many passengers survived finding themselves alive in the tall Iowa cornfield that graced the runway.  The cool moisture of the tall cornstalks may have had a beneficial effect on the flames. Remember that whenever the fuselage of a plane ruptures you are provided another possible exit;  take advantage of it.    But believe me, no Flight Attendant will have to tell you that!

The attacks of 9/11 were very well planned .  I know that they were in the planning for many years and a lot of money was spent in their careful planning.  I  am convinced that I had six of the terrorist/hijackers on at least two different flights of mine and that I personally spoke to at least 4 of them on separate occasions during their reconnaissance flights prior to 9/11.  A chilling retrospective thought.

The first time was out of Florida.   This small-in-stature middle eastern man was a passenger in coach sitting about seat 10A on our MD-80 aircraft.   The flight was moderately light, about half full.  At that time we were still serving drinks and meals in coach!  After we finished the meal service, this man told me that he was in flight school in Florida and that he would like to go look around the cockpit.

When I inquired what type of aircraft he was training in he replied that he was going to be a Captain on a 767.  I found that almost unbelievable knowing how much our Captains have to go through in order to become qualified on the wide-bodied aircraft.  And the years of flying that were needed for them to become senior enough to hold a Captains bid with the major air carriers.

I politely told him that I would check with the Captain, but I knew the answer even before saying I would check with the Captain.   I asked him for his boarding pass so I could present it to the Captain and I remember his unusual name –Hani Hanjour.  I remember the conversation well, because it was such an unusual request.  Sometimes we would allow children to come to the cockpit during flight when there were none of the security cockpit restrictions that are now in place.   After making the Captain aware of the request, I told the man that he was welcome to stop by the cockpit after the flight to visit with the pilots.  He never did stop by the cockpit.  I confirmed that he was Hani Hanjour from the photos I saw later of the terrorists.

The other incident occurred out of Newark, probably in early August, 2001.  You will recall that one of the 9/11 flights departed from the Newark airport.   There were five middle eastern men on my Newark-St. Louis-San Francisco flight;  three in the rear of coach, one near the front of coach, Marwan al Shehhi, and one in First Class.   Same type of airplane – an MD-80.   I was working in coach and three of them had seats across from the back galley, but were very interested in the boarding process. They were standing up in and around the rear galley, blocking the aisle to the rear lavatories and just generally “in our way”.

I recall that there was a lot of conversation ( in Arabic) between them and again, this is behavior out of the ordinary, so I remember it clearly, even several years later.   All of them did not speak English and finally one of them asked me if there were still passengers coming on board.  I told him that we still had twenty minutes before departure.    With a very concerned look on his face,  Mohammed Atta asked me if the “flight was going to be full? ”    I remember replying very matter-of-factly, “We are always full, if not overbooked out of Newark.” He replied something like, “even on Tuesdays?” I said “Every single day, every flight I’ve ever worked out of Newark has been full.”  He was very concerned by this bit of information and it prompted more intense conversation between the three men.

You will recall that 9/11/01  was a beautiful warm late summer Tuesday.   Even during the recon flights during the summer of 2001, they already had the date of September 11th established.

The rest of our conversation went like this:   He (Mohammed Atta) asked me about other American carriers out of Newark that flew to San Francisco.    I told him that I just didn’t have that information and that they would have to check another carrier.    I now firmly believe that it was my comment to Mohammed Atta that prevented the loss of one more American Airlines plane and crew.   I believe that my remark “Every flight I have ever worked out of Newark has been full.” caused the terrorists to rethink their plans and change from American Airlines to United Airlines.  I am sorry though for the terrible loss of crew and passengers of the United Flight 93 that the terrorists hijacked out of Newark.  By the way, United  Flight 93 was also scheduled to fly from Newark to San Francisco which is the same route that my flight took the day I had the terrorists on board for their recon flight.

Mohammed Atta was the ringleader terrorist and the reconnoissance flights in August , 2001 were their means of finalizing their terror plot.

You will recall that September 11, 2001 was a bright and beautiful Tuesday.  This means that they had their plan in place MONTHS before the actual attacks.  He actually asked about the loads on other air carriers and I told him he could check, but I had no way of knowing how full other carriers were on certain flights. You will recall that all of the hijacked flights were carrying very light passenger loads.

One of the men I spoke to on this flight was Mohamed Atta, the terrorist pilot who flew American Airlines Flight 11 into the first World Trade Building Tower.

Hani Hanjour was another of the  terrorist pilots; he flew the American Airlines flight 77  into the Pentagon.

Marwan Al Shehhi was one of the terrorists on my Newark flight’ he was the pilot that crashed the second plane, United 175, into the second world trade tower.

I never used to turn my TV on in the morning.   Now, I turn it on most mornings, just to get the news.

I will fly my large US flag on 9/11.  It is a day we need to honor our country and those who lost their lives.

Will you please fly your flag also?

September 8, 2011

Fly Your Flag September 11

Posted in community, History, Life, Portland tagged , , , at 12:36 am by pdxfirefly

This Sunday is the 10th anniversary of September 11th.  I already have my American flag flying. 

Today, I went to Dollar tree and purchased 8 small flags on a stick.  Tomorrow, we will put them in the front yard of my neighbors houses.   I want everyone to remember and honor the lessons of that day!   The Portland Port of Authority has lined Airport Way, the road leading to the airport, with large American flags.  I bet it is beautiful!

Fly Your Flag!

September 6, 2011

Nostalia Gum

Posted in community, Fun, History, Life tagged , , , at 12:49 am by pdxfirefly

OK, so I am checking out at Bi-Mart after getting my 30 Seconds Cleaner and I am just about finished with  my transaction when I see it.  The little cardboard display stand focusing my attention on Nostalgia Gum!  Yes, there they are … the burnt orange colored wrappers of Clove gum, the blue wrappers of Black Jack gun and then the white wrappers encasing (my favorite) Beamens!  I purchased one of each and had black gum in my mouth before I exited the check-out stand! Mu-m-m-m, it had the same licorice flavor that my 7 year old brain remembered!  This non-gum-chewer will treat herself to a piece every day!

Do you remember Black Jack, Clove & Beamens?

September 5, 2011

Labor Day, 2011

Posted in community, Fun, History, Portland tagged , at 12:56 am by pdxfirefly

I hope that you all enjoy this National Holiday and that you are flying your flag today!!!!

July 19, 2011

HOLLYWOOD

Posted in Health, History, Life, travel tagged , at 12:20 am by pdxfirefly

 
Did you Know?

The Hollywood sign was first erected in 1923. Conceived as a real estate ad, it originally read Hollywoodland. The sign stands 50 feet tall, stretches 450 feet across, weighs 450,000 pounds.

June 22, 2011

Doxil # 2

Posted in Health, History, Life, Personal tagged , , at 12:38 am by pdxfirefly

I started on a different drug for my Ovarian Cancer recurrence.  My CA 125 had skyrocketed to 1618 (normal is 30 or below) just before my first Doxil infusion May 13, 2011. 

It is usual for there to be a 2 to 3 month lag time in any measurable results from this drug Doxil, so we were not expecting to see any decrease in my CA 125 levels.  In fact, they often increase the first month on this drug.  

Enter Amazing Firefly!!!!!  When I went for my second infusion on June 17th I had hoped for a decrease in my CA 124 level because of how I was feeling.  I was not experiencing hardly any pain, other problems that had been very apparent had greatly lessened and my energy level seemed to be a bit higher.  The lower abdomen pain/gurgling was almost completely gone and my color seemed better, not only to me , but also to my family. 

Ah, yes!  My CA 125 had indeed gone down!  It was now at 757!  Another one of my favorite airplanes!   Yep, it had decreased by about half!  Everyone at the doctor’s office was happy about that including me!

And so, I had my second infusion of Doxil and went home to rest some more while I fight this sneaky opponent who is trying to invade my body.  Is cancer like the ‘invasion of the body snatchers’? Well, I must fight to keep it from invading my body any more! Go Doxil!!!!

May 27, 2011

Feeling Better

Posted in Health, History, Life, Personal tagged , , at 4:20 pm by pdxfirefly

Ah, yes! Today I am feeling better.  So well in fact  that I actually got dressed for the first time in 8 days.  And then I took sweet understanding Mercedes for a nice medium walk — her longest one with me in over 9 days!  And then… we went for a ride in the car.  She loves to ’go bye-bye’ in the car.   I needed to go to the bank, so we did the drive-through bank (which is 3 miles away instead of .5 mile)  where she always gets a little treat and I picked up a Subway salad.  It was nice to go out for little drive and I didn’t even mind the afterschool traffic which usually I try to avoid.

All food still tastes not very interesting… In fact, I had two grape popsicles for dinner last night!   But Shepherd’s Pie, courtesy of Jeannie is on its way for my dinner tonite!   I especially like it when a little dessert is also brought along!!!  We shall see!

March 26, 2011

Drs. Appointment

Posted in Health, History, Life, Personal tagged , , , , at 12:29 am by pdxfirefly

I had a regularly scheduled doctors appointment yesterday.  My blood had been drawn earlier in the week and I usually get my lab results and my  CA 125 test results when I go to my appointment. 

This time was different because I am waiting for Grandbaby #2 to decide to arrive and I’ll be watching Grandbaby #1 when that time comes.  So I requested the results via phone a day earlier.  My doctor called with the results at 6:00 pm on Thursday night while I was out running a last-minute errand.  The message was blinking on my answering machine when I arrive home 5 minutes later.

I was not surprised at part of her message “Your Ca 125 result came back at 53.  We can visit about this at your appointment tomorrow.” No other explanation was needed. We both know that the normal range for a CA 125 is below 30 and my last 4 were in the 12 – 18 range, so a reading of 53 means that my CA 125 levels have started to climb once again. The rising CA 125 did not come as a surprise; in fact I would have been surprised if it WAS in the normal range. 

Why?  I am so very attuned to my body and I have been having some minor, but persistent symptoms.  For me the main one is Fatigue — if I have to get in bed and take a nap because I just can’t go on with normal daily activities, then I know that the cancer is rearing its ugly head again.  And I had several ‘time for a nap’ days recently.  The other one is a particular taste in my mouth that doesn’t go away.  Then there is the continuous minor sensations in my abdomen and the less persistent but  bothersome reflux. Another one is new constant leg pain.  Yes, who would have thought that leg pain is a symptom of a deadly gynecological cancer?! Well it is because the tumors can cause pressure on nerves which radiate down the leg to cause unexplained leg pain. 

At the appointment, my doctor discussed everything very thoroughly.  She is extremely thorough and makes sure that the patient understands her detailed explanations with diagrams and graphs.  Since I want to know as much as possible what is going on, what the possible prognosis might be, what options are, etc, I love her manner.  In fact, I realized yesterday that she & I actually have a sort of ‘short hand’ way of communication because after two years, we understand each other so well.  I feel very fortunate to have her as my Doctor and I trust her and her judgment and her expertise completely.

Here is what we have decided.  Since I am mildly symptomatic and able to function quite well on a daily basis, there is no need to rush to Chemo at this time.  There are many studies to support this and I totally agree.  After Grandbaby #2 arrives, and my Grandmotherly duties will be more flexible, I  will have a CT scan done.  I’ll probably have another CA 125 done at that time so we can see the trend of that test.  After we get that scan report, then we will meet and make some decisions.

The thing to remember about Chemotherapy is that there is a time and place for it.  Chemo is very hard on the body and starting Chemo too early in this instance just doesn’t make sense right now.  Yes, I feel a little sick all the time, but with Chemo, I will feel really bad and not be able to do many of the things that I can now still do.  It is a quality of life decision as well as a medically sound decision. I hope that explains it to you in a way that you can understand this decision a little better.

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